A Parent’s Guide to PMDD
When your child is struggling, you want answers - but with Premenstrual Dysphoric Disorder (PMDD), too many families are left in the dark. PMDD is a severe hormone-based condition that affects around 5–8% of people who menstruate, causing symptoms like extreme mood swings, anxiety, fatigue, and pain that can disrupt school, relationships, and daily life. Despite its impact, it’s still widely misunderstood and often misdiagnosed.
That’s where The PMDD Project comes in. As the UK’s first and only charity dedicated solely to PMDD, they’re leading the way in raising awareness, funding research, training medical professionals, and - most importantly - supporting those living with the condition and their loved ones. From free resources to community building and workplace advocacy, The PMDD Project is working to make sure PMDD is finally recognised, understood, and taken seriously.
For this guide, we’re honoured to be joined by Dr. Milli Raizada - medical expert and PMDD ambassador - and Ellisha Blake, passionate advocate, campaigner, and ambassador for The PMDD Project. Together, they’ll share vital insights to help parents understand PMDD, spot the signs, and better support their children through it.
What is PMDD, and how is it different from PMS?
Before we dive into parenting tips, let’s get clear on the basics. What exactly is PMDD, and how does it go beyond the “usual” PMS symptoms most people know?
Dr. Milli Raizada:
PMDD (Premenstrual Dysphoric Disorder) is a severe form of premenstrual disorder that affects mood, energy, and physical wellbeing in the two weeks before menstruation. While PMS can cause bloating, irritability, or mild mood swings, PMDD symptoms are much more intense and can be debilitating.
Ellisha Blake:
For me, PMDD feels like a dark cloud that takes over for two weeks. It can bring extreme emotional distress, anxiety, physical heaviness, and even thoughts of not wanting to be here. It impacts relationships, work, and every part of life in a way PMS does not.
What can parents do to help a teen who’s living with PMDD?
So, what can you actually do as a parent when PMDD is part of your teen’s life? Here are practical, compassionate ways to show up and make a real difference.
Ellisha Blake:
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Believe them – Never dismiss their feelings as “just hormones.”
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Be present – Sit with them during their worst days and offer small acts of care.
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Communicate openly – Agree on a support plan outside of their luteal phase.
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Validate their experience – Reassure them you hear and see them.
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Help them connect – Suggest support groups or online communities.
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Support lifestyle adjustments – Flexibility with schedules, therapy, or supplements can help.
How can parents speak up and get the right help or treatment for their teen with PMDD?
So how exactly can parents be the best advocate for their child?
Dr. Milli Raizada:
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Document symptoms – Use a period-tracking app or diary for at least two cycles.
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Be proactive with healthcare professionals – Request a referral to a specialist if the GP isn’t familiar with PMDD.
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Know the treatment options – These can include lifestyle changes, therapy, supplements, hormonal treatments, or medication.
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Seek expert-led resources – Organisations like the PMDD Project offer education and GP training.
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Advocate strongly – Push for a second opinion if needed and ask directly about PMDD.
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Raise awareness in their environment – Work with schools to allow for flexibility during symptomatic phases.
Supporting a child with PMDD can feel overwhelming, but you don’t have to figure it out alone. Understanding the condition is the first step - and the next is making sure your child feels seen, believed, and supported. The PMDD Project has a wealth of free resources, community spaces, and expert-led advice to help parents and families navigate this journey with confidence. Because while PMDD is tough, no one should face it in silence - and together, we can change the story.
